Thank you to EVERYONE who has replied to this thread! FreshFluff and Lookin, thank you for the very logical suggestions. I have seen both an oncologist and a cancer surgeon out-of-network, out-of-pocket AND got a procedure done by an out-of-network provider. (Un-ironically enough, it was the EUS done on January 6th -- the only procedure that yielded something "real" rather than images described as "unremarkable.") The aforementioned procedure was supposed to be authorized beforehand and was not (that's its OWN story...) resulting in a bill totaling 65% what I grossed last year. My insurance seems to be taking care of that now, but it was a pretty major stressor for a bit.
As far as getting support, my dad has been driving 100+ miles to my place to take me to most of my appointments. Because of the dizzy spells, I don't want to drive more than 15 miles one way if I have to. He has been my extra set of eyes and ears, which has been great. My sister hooked me up with a health advocate organization who helped me get through to insurance about the previously unapproved PET scan. I doubt it did any good because it took a new request from a totally different doctor, but it is good to know organizations like that exist. Speaking of organizations, Imerman Angels is supposedly finding me a support mentor around my age with a similar type of cancer, but I don't know how successful they'll be; I'm a bit of a unicorn. I will ask my palliative care specialist about any/all local support groups too.
T